Patient Information Sheet: Data For Impact Nov 10 2020
Physio First Data for Impact Study Patient Information Sheet
This physiotherapy practice participates in a national audit called the Physio First Data for Impact study. This project has been commissioned by Physio First (the trade organisation representing Chartered Physiotherapists in Private Practice in the UK) to enable private practitioners to fully understand and quantify the nature, frequency and outcomes of treatments provided. Participating physiotherapists will ask their patients if they are happy for their treatment information (or data) to be included in the audit.
To ensure compliance with GDPR regulation we will only collect data that is necessary to perform the task. The University of Brighton is able to process personal data for the purposes of research using ‘Public Interest’ as it’s legal basis for processing data. For further information, please see the University’s Privacy notice https://staff.brighton.ac.uk/reg/legal/other/Research_Privacy_Notice.pdf
What information is collected about patients?
- General details (including age, gender and occupation)
- Why physiotherapy is needed (the physiotherapist’s diagnosis of your condition)
- What treatment was given and the results of the treatment
- The discharge information (outcome of treatment and goals achieved)
Who collects this information and who will have access to this data?
Your physiotherapist will collect the information and enter it onto a password protected national database which is held by an independent organisation, the University of Brighton. Whilst your name will be visible to the practitioner on their system, your name will not be transferred across to the University. Instead an automated code (with no identifying information) is created for each patient record.
How is the information used?
The University of Brighton bring together and analyse data from participating physiotherapy practices across the UK. The university send a summary report of the national data to Physio First, and this is also available to the physiotherapist. The national data may also be published in academic journals or presented at physiotherapy conferences however, you will not be identifiable within it.
Can patients refuse to give this information?
Yes. If you don’t want information about your care to be used, you have the right to request that it isn’t. This will not affect the care and treatment you are given. If you have any questions or concerns about the information collected please discuss this with your physiotherapist.
If you are happy for your information (or data) to be included, please can you complete the attached consent form and hand it to your physiotherapist.
If your treatment is being carried out remotely, for example via video link or telephone, your physiotherapist will send you this information sheet and a consent form electronically. In order to provide your consent please complete and return the consent form electronically or respond to their email clearly stating that you have read the Patient Information Sheet and that you consent for your data to be used as part of the national audit (Physio First Data for Impact project).
Thank you for reading this information sheet. DfI study_Patient Information Sheet (v3_22nd July 2020)
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